That was Fosamax then he suggested for her Reclast I was with her 'after the injection she started feeling funny and luckily she was in the clinic as the Dr kept her there for awhile . In addition, the blood supply is cut off from the area. Osteoprotegerin is a cytokine (immune system signaling protein) that prevents RANKL from overwhelming the immune system regulation of bone remodeling. I have not taken anything now for about four years and my Dr. wants me to take prolia or fosamax again. Mild side effects in males* using Prolia for osteoporosis include: back pain. Still dont know the answer. Any side effects? Thankfully, I didnt listen to my doctor, and set out to find the truth about Prolia. Please answer the question. Because Prolia is far from well-studied, Amgen cannot even explain why it causes thigh bone fractures as well as pain in the thigh, groin and hip area. All Rights Reserved. Its just SO expensive so I'm going to have to stop taking it and will take another med to supplement my bones. My mother and grandfather both had osteoporosis so I was DESTINED to this. I learned from my new doctor MD that somewhere in the last 8 years I have had a compression fracture in the lumbar. I do have friends taking injections and tests have improved. @lioness just saw your comment about your girlfriend almost dying from a Prolia injection. Wishe they would show your version, Vivienne! Vivian!! You may have already seen the commercial featuring Blythe Danner strolling confidently through an outdoor farmers market, buying various wares and closely inspecting and cradling a fragile glass ornament. Furthermore, you should eat more foods that improve your bone health. Lets keep trying to change that through education, and I commend you for your efforts in doing so! Second, a number of studies (4, 5) that compare Prolia to bisphosphonates demonstrate that Prolia leads to a greater increase in bone mineral density (BMD) and reduced bone turnover markers (BTM) . Also go and subscribe to the greenmed site as well as the dr mercola web site. So instead of taking Prolia, Ive decided to follow a drug-free path to prevent fractures, such as including bone-building, alkalizing foods in my diet., She leans closer to the camera and almost whispers, My doctor barely warned me of Prolia's terrible side-effects, but I discovered them on my own., You see, Prolia tampers directly with your immune system, stopping a protein called RANKL from allowing certain immune cells to be converted into osteoclasts, the cells that remove old bone to make room for new bone. I had no bone density decreases. Also knee pain. Then, I had successful surgery to locate and remove bad PTH. Again, I could be wrong. Maybe thats why she isnt saying anything. Did you end up stopping the treatment? Stop The Bone Thieves guide, exclusive info, plus vital osteoporosis news and updates. have had 5 doses of Prolia over past 2 1/2 years, No side affects or other problems but also no improvement in bone density on DEXA scan. The situation gets a lot worse in the bones of the jaw. A good friend recommended your website. We are expats and have been living aboard for the past 6 yrs. Thank you, Vivian and to all the people who have bravely shared their stories. But after seeing the result of my tests they remained in askance Keen to know if anybody else has had hair issues or alopecia. What you need to know about osteoporosis prevention and treatment. Drug information contained herein may be time sensitive. That had to be in the 2000's cant remember date but is doing well now . I am now taking prolia, I still try to eat healthy food but I need calories to help my weight which means more sugar and fat are beneficial. I'm grateful it helped. Then she began slowly getting less and less active, and eating less food, not singing, not participating in anything. Vivian, I enjoy reading all of the information you have provided. I have full blown osteoporosis.. most likely inherited from my paternal grandmother. If I can prevent just One person from taking this drug mayb all I am going through will be worth it. ?Would like to consider forteo again, could have been a drug combination that caused issues. The fracturing has stopped. Also waiting for a song. I've done it for 2 years and just had a new bone scan which had really improved. Ive had 6 vertabre compression frxs, 2 wrists and one broken shoulder. Again, tobacco is steadfastly absent from what you (quite accurately, Id say) call a carefully crafted script. Prolia certainly did not prevent me from having bone fractures! Get information and reviews on prescription drugs, over-the-counter medications, vitamins, and supplements. Prolia is no exception. Symptoms and Causes. My wrist on my left hand dropped rendering my hand lifeless- I was rushed to the emergency- room and 2 doctors immediately took care of -setting -me -up for CT Scan for my brain- EKG for my heart- and a ultra-sound for my Carotid arteries- the medical team were perplexed the Neurologist was speechless. It does not allow old bones to be recycled and yet blocks the formation of the new ones. By modifying the immune system, it impairs general immune response. Im trying to appeal. I had 2 injections, 1st, no side effects,2nd one very bad side effects: severe pain felt like my bones were poping out of my body, rash and was blacking out. Denosumab is given in a subcutaneous (just below the skin) injection twice a year. Wishing your parrot continued good health. The side effect I struggle most with is the increased body temperature. We have to stand up for our rights for our body, No drugs for our Bones. Read expert perspectives on popular health topics. Ear blockages and constant sinus and throat infections, croaky voice. My hair did not fall out. People who received better dexa scans after taking don't be fooled!!! In 2004, at age 60, I suffered a fractured femur after 2 1/2 years on Fosamax, which my doctor insisted I needed to take due to a diagnosis of osteopenia. Interested in more discussions like this? I wish I could get my new DEXA scan but I have to wait until the COVID 19 is not so bad (I have NO immune system). Asking questions and discussing the pros/cons (always with a professional) was very helpful for me. Dear Vivian, First of all the Dr had her on Fosamax for awhile I forget the time but her jaw bone started to hurt she went to dentist and he told her her teeth where lose and she should talk to the Dr about her med Fosamax . Have you looked into Reclast? Please share your positive and negative experiences with the drug, and compare it with other treatments you have used. Please note the date of last review or update on all articles. In August I broke out with a rash on legs, arms,etc, they dont know what it is from, doctor , after doctor, my one doctor wants me to go on Prolia, but I said NO, I have enough allergies from wheat, soy, etc, mainly from food, I have 1 week & a half until the24th of this month to get off predisone, then i will have a food allergy test, to see what I am sensitive to, it has been 3yrs, since I had this blood test, & I live without any drugs ,lots of veggies & fruits, grains, beans, etc. The information on this page has been compiled for use by healthcare practitioners and consumers in the United States and therefore neither Everyday Health or its licensor warrant that uses outside of the United States are appropriate, unless specifically indicated otherwise. 6. Alcohol and Edema - Is there a Connection? I then suffered compression fractures of the spine and have been debilitated since the beginning of this year. Prolia may be administered by a health professional or the osteoporosis patients. I feel that no one should push Polia. I had the bones of an 83 year old woman. I did not fall or even bump into anything, ended up in the E.R., had tons of tests which which were inconclusive, and sent home with pain meds. The list price for Prolia is $1,477.16* , per treatment every six months. common cold symptoms, like a runny nose or sore throat. Thanks for sharing your story with us, Sandi. I am 52 and was diagnosed with severe osteoporosis when I was 27. I can barely walk. I was stress that second year from a bad relationship. The next month got UTI and chill so much. Prolia, manufactured by Amgen, is approved for the following indications per the Highlights in the Prescribing Information: Treatment of postmenopausal women with Wear mask, use santizier (SP), wash your hands etc. I hear it over and over. In addition to always eating fresh fruit and vegetables, I walked 1 mile every day. This is a tiny little fact that many doctors fail to mention at the outset. 3 yrs ago my doctor said I would not be able to stop or reverse my bone loss. I will let you know if I experience any side effects. Plus I had to go on a prescription drug for Afib, which may or may not contribute to bone loss. Am on arimidex which is not great on bones. Therefore, Prolia should be avoided by those at risk of hypocalcemia. You sounded so upset so am glad to hear this again. Prolia was the subject of a series of drug trials sponsored by Amgen including a high-profile short study undertaken by the National Aeronautics and Space Administration (NASA). I am glad you are doing well on the prolia. When I got home my doctor confirmed earlier tests had shown my potassium was low, but I was never told this, or the possible consequences!! I get regular bloodwork and try to stay on top of my health issues. They can break easily. Your doctor should be able to help you decide by providing all the relevant information and explaining the major side effects of any treatment he or she recommends. (Now were okay.) The situation is further worsened by the observation that Prolia lowers blood calcium levels. You should make this commercial and put it on YouTube. I read that brochure that came with the injection and read all the side effects and my doctor assured me that they were extremely rare. Due to Afib, I also had to exercise less. Read on to find out why Prolia is definitely not what your bones need. Most often, it is associated with bisphosphonates given intravenously, not taken by mouth (as most bisphosphonates are). What medication can save selected bones and rotten another?, It is a well-known fact that big Pharma is laughing all the way to the bank, I for one, never had to take drugs, because, I was raised by a mother who believed in the best nutrition and so, I have always enjoyed excellent health! Cerner Multum provides the data within some of the Basics, Side Effects, Interactions, and Dosage tabs. I had many of the terrible side effects now associated with them but did not realize at the time that the drugs were causing them. I've read the warnings and it sounds like it may be trouble. Update on my last post .had 4th injection Jan ,this has been by far the worst for side effects .terrible leg cramps and pain ,was given muscle relaxants ,which doesn't seem to help ,I feel I have no quality of life ,doctors don't seem to want to disscuss that it may be caused by prolia .my appointments always seem to get cancelled or delayed ,when I ask to discuss coming off prolia ,I will not be having another injection ,this drug has disabled me ,I was ok prior to this ,the side effects are not worth it . It's bad enough worrying about Covid! excess air or gas in the stomach or bowels. So believe in your bones and believe in yourself! The doctor was furious when I said I wouldn't take it. I do have this information though: Below is information from NOF about denosumab (Brand name Prolia). How wonderful if it actually could be shown on TV. I was so glad I found it all those years ago. After researching this poison I wish I had never agreed to being injected with it. As with everything else in the human body, this varies with each individual. I was on Boniva years ago and my girlfriend said get off it now!! Have had severe joint pain all over along with worsening of psoriasis. 10 years ago I was diagnosed with Osteoporosis and have not been using any drugs after finding your Save our bone program. I don't think you know me, but I'm having pre-op tests on Monday at Mayo and surgery on the 9th and 11th. Im having to have an implant now, I take care of my teeth, this has happened now. But, what i have learned, from Vivians website, in the past two weeks, is astounding. What to believe?? I want to thank you for all your posts and all the wealth of information. I would not recommend this drug. She went to her endocrinologist and he put her on massive dose of D3 and other things . No muscle pain. I dont want to continue fearing that I may experience a compression fracture because I didnt take any drugs but I read that taking Prolia doesnt make any difference to your bones but just messes up your immune system! Theyre alkalizing and give your bones the nutrients they need to build and resist fracture, no matter your age. Sclerostin is a protein that helps regulate bone metabolism. I have had three Prolia injections and really dont want the next". I forgot to say I have been trying to eat better and have been taking an Algae based calcium supplement during this 2-1/2 years. In addition, her voice sounds gravelly and thoroughly smoked as well. The shot was given in the abdoman by my doctortotally painless. The NASA study tested the efficacy of denosumab on 24 female mice for 12 days in the microgravity environment of the International Space Station. What will happen to my jawbone if I take this medication? I will not be taking Prolia or any other drug again. Plus, we need to find ways to de-stress which is VERY important! My recent bone density showed 5.3% increase in my hip bone. She turns to the camera and smiles, as if youve just walked up to her, and says: Hello! Information on drug interactions with Prolia is lacking because there are no clinical studies that have investigated the long-term safety of the drug. If you rather not be a guinea pig to Big Pharmas new wonder drug, then you should consider natural alternatives than can help your osteoporosis. The big day is coming! The tobacco connection to osteoporosis never seems to get mentioned. It makes me feel sick that I didnt follow my gut feelings and was talked into this. Dont take this drug. Like. This past June 1st, the FDA approved Prolia (denosumab), a brand new twice-yearly injectable osteoporosis drug by Amgen. The lack of long-term safety studies for Prolia makes it highly dangerous. Prolia is usually recommended for osteoporosis patients with a high risk of fractures particularly those at risk of developing multiple fractures. Thanks for your programso glad I found it!! Because many people are living longer these days, one of the biggest responsibilities of modern medicine is to provide care and treatment for those diseases that become more common with increasing age. My endocrinologist feels Ive maximized benefits of fosamax and that category of drug and recommended prolia. These vitamins improve the absorption and regulate the blood and bone levels of calcium and phosphorus. common cold symptoms, like a runny nose or sore throat. I was diagnosed with osteoporosis, I am 58 years old. Enter the shape, color, or imprint of your prescription or OTC drug. At least they are obliged to inform about side effects but the problem is the persuasive tactics of doctors. Had third prolia injection November 2018 after much deliberation as not happy with possible long term effects and negative feedback wit other users. God Bless. Hope, hope not! Prolia has caused me great damage to my jaw bone I need to get in touch with whoever is in charge of this drug so they can pay for me to have this problem corrected before I get an attorney. I would love to see your commercial so that more people could see the truth behind these terrible drugs. What Prolia is and how it works. Mild side effects in people Well said, I read your whole parody commercial to my hubby and we were both impressed. There were an estimated 39,000,000 56,000,000 cases of flu. There are guidelines and tools designed to help you and your doctor decide whether to start treatment, and as a patient, you have the right to know every detail of the treatment options being offered. It has controlled the development of new tumors since April 2016. But she's at where we use to board her and they love her and she's doing great!! I havent had a bone scan since. 21218 St Andrews Blvd #240 In addition, it disrupts the formation of new bone. I have been encouraged by a two doctors to get the second shot and see if the same thing happens and then we will know for sure if it is the shot or not. Ive been on Prolia 3 years after other biphosanates. I followed a diet of K2MK7 for six months and lowered my calcium by 8 tenths of a point, a success in my opinion. In addition. With a history of breast cancer my oncologist is suggesting prolia as there seems to be some info that is prevents bone cancer and 50 percent less fractures. The drug co Amgen told me you need to replace Prolia with another drug because Prolia will take from your bones after stopping it, usually attacking the spine. Tobacco remains The Great Celebrity Tabooexcept for the occasional officially-sanctioned scriptBlythes daughter Gwyneth Paltrow is well known for copping to her guilty pleasure of one cig per week (except when Barack Obama visited her home, when she reportedly chain-smoked under the stress)is this a guilty pleasure or naughty habit mother and daughter share? I learned that it really isnt that different from bisphosphonates such as Fosamax and Boniva. Get a free copy of our Stop The Bone Thieves eBook, exclusive content that you cant find anywhere else, plus vital osteoporosis news and updates. Let me know what you think!! @sue225 As you say, there really are "no terrific pharmaceutical choices for osteoporosis" but the risk is fracturing something and older people who fracture a hip are often in a wheelchair for the rest of their lives and also many pass way within a year due to lack of mobility. Evidently, Prolia affects the sperm enough to pose teratogenic risks even in fathers. Weighing the new approaches to treating Crohns and ulcerative colitis. ?Hypothroid, hashimotos. Plus, I got very lax on the Save Our Bones program although I continued to eat more veggies than the average person. See what your medical symptoms could mean, and learn about possible conditions. Menopause is over as well. Thank you for reading my story. What happened to your friend in PA that took the bone builder drugs? I am due to get my second shot on August 26th and struggling to know what is the right thing to do. I had my shot 3 weeks ago and side effects will stop me from continuing. While the disruption of the immune system is terrible, the effect of Prolia on bone remodeling is simply unforgivable. How did you manage the pain side effects of Prolia. Also, the number of subjects enrolled in the study and any confounding factors other things that could influence the study results, such as lifestyle factors should be taken into account when drawing conclusions. A lovely fantasy. And heres why. I didn't say anything about coffins being stacked outside of hospitals, I only know of", "@lioness just saw your comment about your girlfriend almost dying from a Prolia injection. Reading the products safety information on the manufacturers website is particularly depressing. Severe hair loss - alopecia, eczema, dry skin, I have been taking Prolia for 2 years I was happy with my initial bone density scan results taken after a year However I have now developed severe alopecia, a side effect , and I am stopping any further treatment. I love thus parody and wish that was shown on TV. Did you ever take the next injection? Denosumab (brand name Prolia) is an osteoporosis medication that uses human monoclonal antibody. Treatment with Prolia makes bone stronger and less likely to break. So which is it, Blythe? I have been through menopause almost 20 years ago but it feels like that all over again only worse. I am 75 and worry about fractures but I also worry about my immune system and the pain in my joints that may go along with taking prolia..injections. Just ask my daughter, Gwyneth, who avoided the sun and ended up with dangerously low Vitamin D levels when she was just 40 years old! I have started up again 2021. Put this on my watchlist and alert me by email to new posts, Read expert perspectives on popular health topics, Connect with people like you, and get expert guidance on living a healthy life, Get ready for changes to your health care coverage. I guess not, because with two major public-health concerns where lives are lost every hour to every day, Blythe consistently skirts the issue with impunity. And I never said anything about mass graves for flu victims. I agree with Vivian. Very tired and achy since last injection which I did not experience with first two and no changes in other medication so can only surmise effects of Prolia. I've had five injections so far and have great improvement in my right hip and spine . JK. Would like to hear more from anyone else. I wish them healing! Sign up to get tips for living a healthy lifestyle, with ways to fight inflammation and improve cognitive health, plus the latest advances in preventative medicine, diet and exercise, pain relief, blood pressure and cholesterol management, andmore. Therefore, one Prolia injection is administered every 6 months. Doctors are always impressed with me. My doctor is trying to get me to go on Prolia but Im very nervous about it. My strength has decreased alarmingly. The instructions only talk about being on it for 10 years. Ill bet you could get a lot of savers to chip in if you did a crowd-funding campaign to pay for it! Bone remodeling or bone turnover is a two-sided process. ?Don't know that would even be considered again. As sales grow, reports of side effects will also become more common and it will take the FDA too long to respond. Never going to happen. . I also will not take the injections that the doctor recommended because that is even more risky then not doing anything about it. This is something that I wasnt expecting as side effects and learning how dangerous this medication is really worries me. Now have to take rebound drug to prevent spine fractures. Who would seriously take Prolia after hearing all that?! This new drug modifies the regulatory control In many cases, it is first revealed by a sudden fracture and by the time that happens, it is too late to go back and prevent this dreadful event, which can lead to many complications. But then, the regulatory body approved the drug a year later. She never informed me of all the side- effects of Prolia. I went off the drug for 3 years as my rheumatologist suggested. When I sit or lie down, my pain is greatly reduced. This medication (in my opinion using the disclaimers they now acknowledge) was responsible for my fractured femur. Are you aware of anti cancer affects? It is a tremendous success story for humankind but each success brings more challenges to overcome. Take up weight-bearing and strength training exercises. My doctor wanted a two week period between the end of my last Forteo shot and the first Prolia shot. ?I walk every day. Thank you for this information. No there, s no way I,m taking any of those bone builders not after what happened to my friend in Pa. Take care. No muscle pain. Do not consider Communities as medical advice. Privacy, Terms, Disclaimers | Back to Top. Save your medicine, check interactions, sign up for FDA alerts, create family profiles and more. Neither Everyday Health nor its licensor assume any responsibility for any aspect of healthcare administered with the aid of the information provided. Don't miss your FREE gift. Romosozumab binds sclerostin, which keeps it from blocking the signaling pathway for new bone formation. 12 hours after taking Prolia I experienced extreme pain in my thigh and groin I really thought I would have to get an ambulance, it did eventually go slightly, but felt it tender for a few days, I have not felt myself since taking this drug on the advice of my doctor who said there was no side affects, I still have this terrible drug in me for 3 months, but will not take it again. I keep you posted. Blythe Danner is not only an osteoporosis spokesperson; she also has a video rolling in dental-office waiting rooms warning patients to get screened for oral cancer, which sadly took her late husband, Bruce Paltrow, who didnt get screened early enough. At least I stopped it for now! The bottom line is, you dont need dangerous drugs to build your bones. I know that vitamin D is also important for bones and more,so getting sunlight is important in the summer and taking vitamin d capsules in the winter. P.S. My doctor has prescribed Prolia. Researchers have also demonstrated that Prolia reduces the production of breast milk. I will be receiving my 60th and final injection today. They took me off Prolia and I will now be taking a different drug. Diagnosis and Tests. Management and Treatment. That sounded encouraging after I researched the drug I was terrified , went back to my doctor & told him what I discovered & he denied the side effects. Not sure what to do now as I have read so much about a rebound effect that makes you even more susceptible to fractures than before you started if you discontinue it. There are side affects to every drug, but our food is lacking in nutrients also. Wrong! I have severe gastroparesis and nutrition is difficult, but I have no choice it seems, than to try to address this through diet and exercise. In the last 3 weeks, I have felt more like I did before the shot. I've developed lower back pain and severe spasms. My doctor said Prolia helped my bones get stronger. Avoid Prolia if you dont want to be susceptible to severe infections that could require hospitalization.. I've had awful hip & jaw pain. Today, I start back on Vivians program! I was only oestopenic and my last bone density test showed an improvement and I put that down to eating even more fruit and vegetables and walking and stair climbing everyday. I think I can gain 15% of it in the next 12 months, just as I did that first 13 months after learning I had osteoporosis. The best thing I have done for my osteoporosis is join the Save Our Bones group!!! The Best Diets for Cognitive Fitness, is yours absolutely FREE when you sign up to receive Health Alerts from Harvard Medical School. The scene fades to black, and a red warning label comes on the screen that states: WARNING: Prolia is a dangerous drug that can ruin your health and your life.. The resulting bone loss increases the risk of osteoporotic bone fractures. Essentially, RANKL contributes to the removal of old bones, so new ones can form in their place. Do you think everyone can reverse osteoporosis on your plan we would like the truth. Stay safe! Every study has limitations, and we should keep them Then I was on aredia, an infusion, for many years, but it is the most damaging of the bisphosphonates to the jaw bone so I stopped since I have bad teeth.
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